The aim of this study was to enhance a deeper understanding of daily life as experienced by young adults with Type 1 Diabetes and their close relatives. Young adulthood is commonly considered as an amendment to adult roles. Increased responsibility, such as a long-term illness in young adulthood, might lead to increased stress and anxiety. Type 1 Diabetes involves large obligations related to self-care, and close relatives might play an important role in managing daily life. A hermeneutic study involving interviews with a narrative approach with couples. The hermeneutic analysis revealed that T1D is always unconditionally present in daily life for young adults and their close relatives. Close relatives are important supporters, they have an understanding based on sharing daily life with the young adults with T1D. Young adults and their close relatives highlighted the experiences of being questioned, which in turn threatens the young adults’ integrity.
Published in | American Journal of Nursing Science (Volume 7, Issue 4) |
DOI | 10.11648/j.ajns.20180704.11 |
Page(s) | 115-120 |
Creative Commons |
This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited. |
Copyright |
Copyright © The Author(s), 2018. Published by Science Publishing Group |
Close Relatives, Couples, Hermeneutic, Type 1 Diabetes, Young Adults
[1] | Toombs SK. The meaning of illness: A phenomenological account of the difference perspective of physician and patient. I: Spicker HTEJ, red. Philosophy and medicine. Indiana University Press: Bloomington and Indianapolis; 1992. s. 3-24. |
[2] | Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol. Health Illn. 1983; 5 (2):168-95. |
[3] | World Health Organisation. First global report on diabetes. 2016. |
[4] | You WP, Henneberg M. Type 1 diabetes prevalence increasing globally and regionally: the role of natural selection and life expectancy at birth. BMJ Open Diabetes Res Care 2016; 4 (1):e000161. |
[5] | Swedish National Diabetes Register. Annual Report,. 2016. |
[6] | Berhan Y, Waernbaum I, Lind T, Mollsten A, Dahlquist G. Thirty years of prospective nationwide incidence of childhood type 1 diabetes: the accelerating increase by time tends to level off in Sweden. Diabetes 2011; 60 (2):577-81. |
[7] | World Health Organisation. Diabetes. 2016. |
[8] | Daneman D. Type 1 diabetes. Lancet 2006; 367 (9513):847-58. |
[9] | Balfe M, Doyle F, Smith D, Sreenan S, Brugha R, Hevey D, et al. What's distressing about having type 1 diabetes? A qualitative study of young adults' perspectives. BMC Endocr Disord 2013; 13:25. |
[10] | Garvey KC, Wolpert HA. Identifying the Unique Needs of Transition Care for Young Adults With Type 1 Diabetes. Diabetes Spectrum 2011; 24 (1):22-5. |
[11] | Lindberg B, Söderberg S. Standing on their own feet: Experiences of young people living with Type 1 diabetes when entering adulthood — A qualitative study. International Diabetes Nursing 2015; 12 (3):79-85. |
[12] | Peters A, Laffel L. Diabetes care for emerging adults: recommendations for transition from pediatric to adult diabetes care system,. Diabetes Care 2011; 34 (11):2477-85. |
[13] | DeCoster VA. The emotions of adults with diabetes: a comparison across race. Soc. Work Health Care 2003; 36 (4):79-99. |
[14] | Marshall M, Carter B, Rose K, Brotherton A. Living with type 1 diabetes: perceptions of children and their parents. J. Clin. Nurs. 2009; 18 (12):1703-10. |
[15] | Abdoli S, Doosti Irani M, Hardy LR, Funnell M. A discussion paper on stigmatizing features of diabetes. Nursing Open 2018; 5 (2):113-9. |
[16] | Bryden KS, Dunger DB, Mayou RA, Peveler RC, Neil HA. Poor prognosis of young adults with type 1 diabetes: a longitudinal study. Diabetes Care 2003; 26 (4):1052-7. |
[17] | Vanstone M, Rewegan A, Brundisini F, Dejean D, Giacomini M. Patient Perspectives on Quality of Life With Uncontrolled Type 1 Diabetes Mellitus: A Systematic Review and Qualitative Meta-synthesis. Ont Health Technol Assess Ser 2015; 15 (17):1-29. |
[18] | Hanna KM. A framework for the youth with type 1 diabetes during the emerging adulthood transition. Nurs. Outlook 2012; 60 (6):401-10. |
[19] | Hirjaba M, Haggman-Laitila A, Pietila AM, Kangasniemi M. Patients have unwritten duties: experiences of patients with type 1 diabetes in health care. Health Expect 2015; 18 (6):3274-85. |
[20] | Sparud-Lundin C, Ohrn I, Danielson E. Redefining relationships and identity in young adults with type 1 diabetes. J. Adv. Nurs. 2010; 66 (1):128-38. |
[21] | Helgeson VS, Palladino DK, Reynolds KA, Becker DJ, Escobar O, Siminerio L. Relationships and health among emerging adults with and without Type 1 diabetes. Health Psychol. 2014; 33 (10):1125-33. |
[22] | Morris RL, Kennedy A, Sanders C. Evolving 'self'-management: exploring the role of social network typologies on individual long-term condition management. Health Expect 2016; 19 (5):1044-61. |
[23] | Bülow PH. Sharing Experiences of Contested Illness by Storytelling. Discourse & Society 2004; 15 (1):33-53. |
[24] | Benner P, & Wrubel, J.. The primacy of caring: Stress, and coping in health and illness.. Addison-Wesley Publishing Company, California,; 1989. |
[25] | Polit DF, Beck CT. Nursing research: Generating and assessing evidence for nurse practice. Philadelphia, USA: Lippincott Wiliams & Wilkins.; 2016. |
[26] | Fleming V, Gaidys U, Robb Y. Hermeneutic research in nursing: developing a Gadamerian-based research method. Nurs. Inq. 2003; 10 (2):113-20. |
[27] | Gadamer HG, Weinsheimer J, Marshall DG. Truth and Method. Sheed & Ward; 1993. |
[28] | Gonder‐Frederick LA, Fisher CD, Ritterband LM, Cox DJ, Hou L, DasGupta AA, et al. Predictors of fear of hypoglycemia in adolescents with type 1 diabetes and their parents. Pediatric Diabetes 2006; 7 (4):215-22. |
[29] | Anderbro T, Amsberg S, Adamson U, Bolinder J, Lins PE, Wredling R, et al. Fear of hypoglycaemia in adults with Type 1 diabetes. Diabet. Med. 2010; 27 (10):1151-8. |
[30] | Haugstvedt A, Wentzel-Larsen T, Aarflot M, Rokne B, Graue M. Assessing fear of hypoglycemia in a population-based study among parents of children with type 1 diabetes – psychometric properties of the hypoglycemia fear survey – parent version. BMC Endocrine Disorders 2015; 15:2. |
[31] | Martyn-Nemeth P, Schwarz Farabi S, Mihailescu D, Nemeth J, Quinn L. Fear of hypoglycemia in adults with type 1 diabetes: impact of therapeutic advances and strategies for prevention - a review. J. Diabetes Complications 2016; 30 (1):167-77. |
[32] | Gunn D, Mansell P. Glycaemic control and weight 7 years after Dose Adjustment For Normal Eating (DAFNE) structured education in Type 1 diabetes. Diabet. Med. 2012; 29 (6):807-12. |
[33] | Anderson BJ, Wolpert HA. A developmental perspective on the challenges of diabetes education and care during the young adult period. Patient Educ. Couns. 2004; 53 (3):347-52. |
[34] | Scholes C, Mandleco B, Roper S, Dearing K, Dyches T, Freeborn D. A qualitative study of young people's perspectives of living with type 1 diabetes: do perceptions vary by levels of metabolic control? J. Adv. Nurs. 2013; 69 (6):1235-47. |
[35] | Mackey ER, Hilliard, M. E., Berger, S. S., Streisand, R., Chen, R., & Holmes, C.. Individual and family strengths: An examination of the relation to disease management and metabolic control in youth with type 1 diabetes. Families, Systems, & Health 2011; 29 (4):314-26. |
[36] | Cahill E, Lewis LM, Barg FK, Bogner HR. “You Don't Want to Burden Them”:Older Adults' Views on Family Involvement in Care. Journal of Family Nursing 2009; 15 (3):295-317. |
[37] | Hillege S, Beale B, McMaster R. Enhancing management of depression and type 1 diabetes in adolescents and young adults. Arch. Psychiatr. Nurs. 2011; 25 (6):e57-67. |
[38] | Weil S. Att slå rot (To be rooted).. Skellefteå, Sweden: Artos bokförlag; 1994. |
[39] | Soderberg S, Strand M, Haapala M, Lundman B. Living with a woman with fibromyalgia from the perspective of the husband. J. Adv. Nurs. 2003; 42 (2):143-50. |
[40] | Grady J. Marcel and hope-loyalty and person J. Br. Soc. Phenomenol. 1973; 4 (3):256-264. |
APA Style
Åsa Carlsund, Siv Söderberg. (2018). Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives. American Journal of Nursing Science, 7(4), 115-120. https://doi.org/10.11648/j.ajns.20180704.11
ACS Style
Åsa Carlsund; Siv Söderberg. Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives. Am. J. Nurs. Sci. 2018, 7(4), 115-120. doi: 10.11648/j.ajns.20180704.11
AMA Style
Åsa Carlsund, Siv Söderberg. Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives. Am J Nurs Sci. 2018;7(4):115-120. doi: 10.11648/j.ajns.20180704.11
@article{10.11648/j.ajns.20180704.11, author = {Åsa Carlsund and Siv Söderberg}, title = {Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives}, journal = {American Journal of Nursing Science}, volume = {7}, number = {4}, pages = {115-120}, doi = {10.11648/j.ajns.20180704.11}, url = {https://doi.org/10.11648/j.ajns.20180704.11}, eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ajns.20180704.11}, abstract = {The aim of this study was to enhance a deeper understanding of daily life as experienced by young adults with Type 1 Diabetes and their close relatives. Young adulthood is commonly considered as an amendment to adult roles. Increased responsibility, such as a long-term illness in young adulthood, might lead to increased stress and anxiety. Type 1 Diabetes involves large obligations related to self-care, and close relatives might play an important role in managing daily life. A hermeneutic study involving interviews with a narrative approach with couples. The hermeneutic analysis revealed that T1D is always unconditionally present in daily life for young adults and their close relatives. Close relatives are important supporters, they have an understanding based on sharing daily life with the young adults with T1D. Young adults and their close relatives highlighted the experiences of being questioned, which in turn threatens the young adults’ integrity.}, year = {2018} }
TY - JOUR T1 - Daily Life with Type 1 Diabetes from the Perspectives of Young Adults and Their Close Relatives AU - Åsa Carlsund AU - Siv Söderberg Y1 - 2018/06/13 PY - 2018 N1 - https://doi.org/10.11648/j.ajns.20180704.11 DO - 10.11648/j.ajns.20180704.11 T2 - American Journal of Nursing Science JF - American Journal of Nursing Science JO - American Journal of Nursing Science SP - 115 EP - 120 PB - Science Publishing Group SN - 2328-5753 UR - https://doi.org/10.11648/j.ajns.20180704.11 AB - The aim of this study was to enhance a deeper understanding of daily life as experienced by young adults with Type 1 Diabetes and their close relatives. Young adulthood is commonly considered as an amendment to adult roles. Increased responsibility, such as a long-term illness in young adulthood, might lead to increased stress and anxiety. Type 1 Diabetes involves large obligations related to self-care, and close relatives might play an important role in managing daily life. A hermeneutic study involving interviews with a narrative approach with couples. The hermeneutic analysis revealed that T1D is always unconditionally present in daily life for young adults and their close relatives. Close relatives are important supporters, they have an understanding based on sharing daily life with the young adults with T1D. Young adults and their close relatives highlighted the experiences of being questioned, which in turn threatens the young adults’ integrity. VL - 7 IS - 4 ER -