A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making

Huei-Lan Chang; Chiou-Fen Lin

doi:doi:10.11648/j.ijcems.20210704.17

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A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making

Huei-Lan Chang, Chiou-Fen Lin

Published in International Journal of Clinical and Experimental Medical Sciences (Volume 7, Issue 4)

Received: 27 June 2021 Accepted: 20 July 2021 Published: 27 July 2021

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Abstract

Cancer is a life-threatening disease, albeit the continued improvement in treatment strategies, there are still many uncertainties during the treatment process and the effectiveness. In the current healthcare settings, shared decision-making (SDM) or patients’ preference and values and participation have less frequently been incorporated in the medical decision-making process. SDM has been advocated in Taiwan since 2016. The aim of this study is to investigate patients’ experiences of participation in SDM. A qualitative research using in-depth interviews design to present the patient's experience of participating in SDM. Purposive sampling of cancer patients above 20 years old in a teaching hospital in Northern Taiwan from January 15^th to April 30^th in 2018 was recruited. A total of 25 patients were enrolled for face-to-face in-depth interview, a qualitative content analysis according Graneheim and Lundman. Three themes of experiences and feelings of SDM participation were summarized, i.e., difficulty in making major medical decision, professional support is the most important, and mutual expect in shared decision-making. Six subthemes are shocked by the diagnosis, layman with deficient knowledge of the medical conditions, sufficient information for decision-making, encouragement and support for motivation, one is the master of his own body, and regain confidence to make decisions and face the future. With the development of medical technology, there has been significant improvement in cancer prevention and treatment in recent years. Still, a considerable proportion of cancer patients showed poor response to conventional treatment or control therapies, by which patients prone to face difficulty in choosing treatment options. Shared decision-making is a process of patient autonomy in which patients are equipped with correct understanding of treatment options and are able to make quality decisions.

Published in	International Journal of Clinical and Experimental Medical Sciences (Volume 7, Issue 4)
DOI	10.11648/j.ijcems.20210704.17
Page(s)	108-114
Creative Commons	This is an Open Access article, distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution and reproduction in any medium or format, provided the original work is properly cited.
Copyright	Copyright © The Author(s), 2021. Published by Science Publishing Group

Keywords

Qualitative Research, Cancer Patient, Shared Decision-making, Patient-physician Communication, Experience

References

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APA Style

Huei-Lan Chang, Chiou-Fen Lin. (2021). A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. International Journal of Clinical and Experimental Medical Sciences, 7(4), 108-114. https://doi.org/10.11648/j.ijcems.20210704.17

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ACS Style

Huei-Lan Chang; Chiou-Fen Lin. A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. Int. J. Clin. Exp. Med. Sci. 2021, 7(4), 108-114. doi: 10.11648/j.ijcems.20210704.17

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AMA Style

Huei-Lan Chang, Chiou-Fen Lin. A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. Int J Clin Exp Med Sci. 2021;7(4):108-114. doi: 10.11648/j.ijcems.20210704.17

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@article{10.11648/j.ijcems.20210704.17,
  author = {Huei-Lan Chang and Chiou-Fen Lin},
  title = {A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making},
  journal = {International Journal of Clinical and Experimental Medical Sciences},
  volume = {7},
  number = {4},
  pages = {108-114},
  doi = {10.11648/j.ijcems.20210704.17},
  url = {https://doi.org/10.11648/j.ijcems.20210704.17},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ijcems.20210704.17},
  abstract = {Cancer is a life-threatening disease, albeit the continued improvement in treatment strategies, there are still many uncertainties during the treatment process and the effectiveness. In the current healthcare settings, shared decision-making (SDM) or patients’ preference and values and participation have less frequently been incorporated in the medical decision-making process. SDM has been advocated in Taiwan since 2016. The aim of this study is to investigate patients’ experiences of participation in SDM. A qualitative research using in-depth interviews design to present the patient's experience of participating in SDM. Purposive sampling of cancer patients above 20 years old in a teaching hospital in Northern Taiwan from January 15th to April 30th in 2018 was recruited. A total of 25 patients were enrolled for face-to-face in-depth interview, a qualitative content analysis according Graneheim and Lundman. Three themes of experiences and feelings of SDM participation were summarized, i.e., difficulty in making major medical decision, professional support is the most important, and mutual expect in shared decision-making. Six subthemes are shocked by the diagnosis, layman with deficient knowledge of the medical conditions, sufficient information for decision-making, encouragement and support for motivation, one is the master of his own body, and regain confidence to make decisions and face the future. With the development of medical technology, there has been significant improvement in cancer prevention and treatment in recent years. Still, a considerable proportion of cancer patients showed poor response to conventional treatment or control therapies, by which patients prone to face difficulty in choosing treatment options. Shared decision-making is a process of patient autonomy in which patients are equipped with correct understanding of treatment options and are able to make quality decisions.},
 year = {2021}
}

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TY  - JOUR
T1  - A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making
AU  - Huei-Lan Chang
AU  - Chiou-Fen Lin
Y1  - 2021/07/27
PY  - 2021
N1  - https://doi.org/10.11648/j.ijcems.20210704.17
DO  - 10.11648/j.ijcems.20210704.17
T2  - International Journal of Clinical and Experimental Medical Sciences
JF  - International Journal of Clinical and Experimental Medical Sciences
JO  - International Journal of Clinical and Experimental Medical Sciences
SP  - 108
EP  - 114
PB  - Science Publishing Group
SN  - 2469-8032
UR  - https://doi.org/10.11648/j.ijcems.20210704.17
AB  - Cancer is a life-threatening disease, albeit the continued improvement in treatment strategies, there are still many uncertainties during the treatment process and the effectiveness. In the current healthcare settings, shared decision-making (SDM) or patients’ preference and values and participation have less frequently been incorporated in the medical decision-making process. SDM has been advocated in Taiwan since 2016. The aim of this study is to investigate patients’ experiences of participation in SDM. A qualitative research using in-depth interviews design to present the patient's experience of participating in SDM. Purposive sampling of cancer patients above 20 years old in a teaching hospital in Northern Taiwan from January 15th to April 30th in 2018 was recruited. A total of 25 patients were enrolled for face-to-face in-depth interview, a qualitative content analysis according Graneheim and Lundman. Three themes of experiences and feelings of SDM participation were summarized, i.e., difficulty in making major medical decision, professional support is the most important, and mutual expect in shared decision-making. Six subthemes are shocked by the diagnosis, layman with deficient knowledge of the medical conditions, sufficient information for decision-making, encouragement and support for motivation, one is the master of his own body, and regain confidence to make decisions and face the future. With the development of medical technology, there has been significant improvement in cancer prevention and treatment in recent years. Still, a considerable proportion of cancer patients showed poor response to conventional treatment or control therapies, by which patients prone to face difficulty in choosing treatment options. Shared decision-making is a process of patient autonomy in which patients are equipped with correct understanding of treatment options and are able to make quality decisions.
VL  - 7
IS  - 4
ER  -

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Author Information

Huei-Lan Chang

Nursing Department, National Taiwan University Hsin-Chu Hospital, Hsin-Chu, Taiwan
Chiou-Fen Lin

College of Nursing, School of Gerontology Health Management, Taipei Medical University, Taipei, Taiwan

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APA Style

Huei-Lan Chang, Chiou-Fen Lin. (2021). A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. International Journal of Clinical and Experimental Medical Sciences, 7(4), 108-114. https://doi.org/10.11648/j.ijcems.20210704.17

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ACS Style

Huei-Lan Chang; Chiou-Fen Lin. A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. Int. J. Clin. Exp. Med. Sci. 2021, 7(4), 108-114. doi: 10.11648/j.ijcems.20210704.17

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AMA Style

Huei-Lan Chang, Chiou-Fen Lin. A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making. Int J Clin Exp Med Sci. 2021;7(4):108-114. doi: 10.11648/j.ijcems.20210704.17

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@article{10.11648/j.ijcems.20210704.17,
  author = {Huei-Lan Chang and Chiou-Fen Lin},
  title = {A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making},
  journal = {International Journal of Clinical and Experimental Medical Sciences},
  volume = {7},
  number = {4},
  pages = {108-114},
  doi = {10.11648/j.ijcems.20210704.17},
  url = {https://doi.org/10.11648/j.ijcems.20210704.17},
  eprint = {https://article.sciencepublishinggroup.com/pdf/10.11648.j.ijcems.20210704.17},
  abstract = {Cancer is a life-threatening disease, albeit the continued improvement in treatment strategies, there are still many uncertainties during the treatment process and the effectiveness. In the current healthcare settings, shared decision-making (SDM) or patients’ preference and values and participation have less frequently been incorporated in the medical decision-making process. SDM has been advocated in Taiwan since 2016. The aim of this study is to investigate patients’ experiences of participation in SDM. A qualitative research using in-depth interviews design to present the patient's experience of participating in SDM. Purposive sampling of cancer patients above 20 years old in a teaching hospital in Northern Taiwan from January 15th to April 30th in 2018 was recruited. A total of 25 patients were enrolled for face-to-face in-depth interview, a qualitative content analysis according Graneheim and Lundman. Three themes of experiences and feelings of SDM participation were summarized, i.e., difficulty in making major medical decision, professional support is the most important, and mutual expect in shared decision-making. Six subthemes are shocked by the diagnosis, layman with deficient knowledge of the medical conditions, sufficient information for decision-making, encouragement and support for motivation, one is the master of his own body, and regain confidence to make decisions and face the future. With the development of medical technology, there has been significant improvement in cancer prevention and treatment in recent years. Still, a considerable proportion of cancer patients showed poor response to conventional treatment or control therapies, by which patients prone to face difficulty in choosing treatment options. Shared decision-making is a process of patient autonomy in which patients are equipped with correct understanding of treatment options and are able to make quality decisions.},
 year = {2021}
}

Copy | Download

TY  - JOUR
T1  - A Qualitative Research of Cancer Patients' Experience of Participating in Shared Decision-Making
AU  - Huei-Lan Chang
AU  - Chiou-Fen Lin
Y1  - 2021/07/27
PY  - 2021
N1  - https://doi.org/10.11648/j.ijcems.20210704.17
DO  - 10.11648/j.ijcems.20210704.17
T2  - International Journal of Clinical and Experimental Medical Sciences
JF  - International Journal of Clinical and Experimental Medical Sciences
JO  - International Journal of Clinical and Experimental Medical Sciences
SP  - 108
EP  - 114
PB  - Science Publishing Group
SN  - 2469-8032
UR  - https://doi.org/10.11648/j.ijcems.20210704.17
AB  - Cancer is a life-threatening disease, albeit the continued improvement in treatment strategies, there are still many uncertainties during the treatment process and the effectiveness. In the current healthcare settings, shared decision-making (SDM) or patients’ preference and values and participation have less frequently been incorporated in the medical decision-making process. SDM has been advocated in Taiwan since 2016. The aim of this study is to investigate patients’ experiences of participation in SDM. A qualitative research using in-depth interviews design to present the patient's experience of participating in SDM. Purposive sampling of cancer patients above 20 years old in a teaching hospital in Northern Taiwan from January 15th to April 30th in 2018 was recruited. A total of 25 patients were enrolled for face-to-face in-depth interview, a qualitative content analysis according Graneheim and Lundman. Three themes of experiences and feelings of SDM participation were summarized, i.e., difficulty in making major medical decision, professional support is the most important, and mutual expect in shared decision-making. Six subthemes are shocked by the diagnosis, layman with deficient knowledge of the medical conditions, sufficient information for decision-making, encouragement and support for motivation, one is the master of his own body, and regain confidence to make decisions and face the future. With the development of medical technology, there has been significant improvement in cancer prevention and treatment in recent years. Still, a considerable proportion of cancer patients showed poor response to conventional treatment or control therapies, by which patients prone to face difficulty in choosing treatment options. Shared decision-making is a process of patient autonomy in which patients are equipped with correct understanding of treatment options and are able to make quality decisions.
VL  - 7
IS  - 4
ER  -

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